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Resident and Family Support Council

The Resident and Family Support Council is a virtual forum to bring people together across the State.  The goal of this Council is to educate and connect people about issues relating to residents and families in the long-term care system. These meetings will occur the 2nd and 4th Tuesday of each month at 3:00 with the topics determined through attendee input. There will be time for question and answer and resource sharing at each meeting. If you are interested in receiving invitations for future meetings, please email lee.moriarty@Illinois.gov and you will be added to our email group.  

Meetings

July 9, 2024

Topic: Psychotropic Drugs: What You Need to Know About Standards of Care and Best Practices.

Description: Psychotropic Drug use including antipsychotics are overused in long-term care which has many adverse reactions for residents, particularly those who have a Dementia related Diagnosis.  To make matters worse, Illinois ranks as the worst in the country for overprescribing these drugs.  During this discussion, Richard Mallot from the Long-Term Care Community Coalition will provide background on the standards of care for nursing home residents and the problem of the widespread, inappropriate use of antipsychotics, particularly on residents with dementia.  Discussion will focus on how this happens, why it is a problem, what appropriate dementia care looks like, and advocacy tips and tools.

Previous Meetings

June 25, 2024

  • Topic:  Illinois Legislative Update – Discussion of aging related bills that have passed during the 2024 Spring Session. 
  • View Presentation Materials: IDoA Legislative Update
     

June 11, 2024

May 28, 2024

  • Topic: The Montessori Method in Dementia Care

View Presentation Materials: Montessori Presentation Handout


May 14, 2024

April 23, 2024

  • Topic: Moving Forward in Long-Term Care!
     

April 9, 2024

  • Topic: Changing the Culture of your Long-Term Care Community – a tool to assist in this endeavor
  • View Presentation Materials: Artifacts Training and Handouts.
     

March 26, 2024

  • Topic: Understanding the Personal Needs Allowance for Medicaid Residents in Long-Term Care Communities
  • View Presentation Materials: Personal Needs Allowance
     

March 12, 2024

  • Topic: Who are the Ombudsman and How They Help Those Living in Care Communities
     

February 27, 2024 

February 13, 2024

  • Topic: My loved one has dementia… I need resources!
     

January 23, 2024

  • Topic: Area Agency on Aging – who they are and what they do
    View Presentation Materials 1, 2
     

January 9, 2024

  • Topic: Everyone has the right to vote in our country and being in a long-term care community does not exclude you from that right. 
  • View Presentation Materials: 123
     

December 12, 2023

  • Topic: Visiting with your loved one during the holidays - ideas of things to make all your visits more engaging.
     

November 28, 2023

  • Topic: Let’s hear from you!
     

November 14, 2023

  • Topic: Resident and Family Empowerment – a discussion regarding how to advocate for yourself.
     

October 24, 2023

  • Topic: Staffing Needs to be addressed in LTC but are the new proposed federal regulations it?
  • View Presentation Materials: PowerPoint 1, PowerPoint 2
     

October 10, 2023

September 26, 2023

  • Topic: The Point of View from the Long-Term Care Ombudsman Volunteers
     

September 12, 2023

August 22, 2023

  • Topic: Understanding your Rights As a Resident In Long-Term Care - Continuing the conversation!
     

August 8, 2023

  • Topic: Understanding Your Rights As a Resident In Long-Term Care

 

July 25, 2023

  • Topic: The Fear of Retaliation is Real

July 11, 2023

  • Topic: Making Life Easier Through Assisted Technology


June 27, 2023

  • Topic: Good Reads & Good Listens—Recommended books and podcasts to help support your long-term care/aging journey.
  • View Presentation Materials.


June 13, 2023

  • Topic: Continuing Our Conversation About What Happens When I File a Complaint with the State About a Long-Term Care Facility?
     

May 23, 2023

  • Topic: What Happens When I File a Complaint About Long-Term Care Facility with The State?
     
May 9, 2023

April 25, 2023


April 11, 2023

  • Topic: What Admission to a Long-Term Care Facility should look like:  Contract Discussion?

 

March 28, 2023

  • Topic: Using Federal “Care Compare” to Assess Nursing Home Ratings
     

March 14, 2023

February 28, 2023

  • Topic: Person Centered/Directed End of life Care Presented by Nancy Flowers
  • View Presentation Materials  
     

February 14, 2023


January 24, 2023

  • Topic: Activities of Daily Living:  What does this mean and what should it look like in long-term care?
     

January 10, 2023

  • Topic: What is a Family Council, How do I Start One and what should it look like? 
     

December 27, 2022

December 13, 2022


November 22, 2022

  • Topic:  Giving Thanks for Family Caregivers in Long-Term Care
     

November 8, 2022

  • No meeting due to Election Day
     

October 25, 2022

  • Topic: Meaningful Engagement During the Holidays
     

October 11, 2022

  • Topic:  Taking Your Loved One Out of The Facility:  From a day outing to vacation, what do I need to know?
     

Sept 27, 2022

September 13, 2022

  • Topic: What Should Meaningful Engagement Look Like in Your Long-Term Care Facility?


August 23, 2022

  • Topic: The Importance of Knowing Your Medications and What They Are For 
     

August 9, 2022

  • Topic: Being Self-empowered with your Dietary Choices
     

July 26, 2022

July 12, 2022


June 28, 2022

  • Topic: You Can Be Treated for COVID – Understanding the various treatments and when/how these are administered 


June 14, 2022

  • Topic:  Abuse, Neglect and Exploitation in Long-Term Care Facilities: Adult Protective Services Role and Ombudsman Role
  • View Presentation Materials HERE AND HERE.


May 10, 2022

  • Topic: Resident & Family Support Council Year in Review- revisiting some of our most impactful conversations


April 26, 2022

  • Topic: Sexual Expression in Long-Term Care Facilities


April 12, 2022

  • Topic: Update on Legislation Pertaining to Long-Term Care
  • View Presentation Materials HERE.


March 22, 2022

  • Topic:  Resident Rights – Your Rights as a citizen and a Facility Resident PART II
  • View Presentation Materials HERE.


March 8, 2022

  • Topic: Resident Rights - Your rights as a citizen and a facility resident PART I
  • Topic: Resident Council Meeting - What are they for and what should they look like?
  • View Presentation Materials HERE.
  • Topic: Family Councils: A Way to Feel More Involved in Your Loved One's Facility
  • View Presentation Materials HERE.


January 11, 2022

  • Topic:  Understanding Your Rights:  The Right to Privacy and Confidentiality. 


December 21, 2021

  • Topic:  The Gift of Resources to Empower
  • View Presentation Materials HERE.


December 7, 2021

  • Topic: We Want to Hear From You!


November 23, 2021

  • Topic: Home For the Holidays- enjoying each other's company no matter where you live.


November 9, 2021

Topic: The How's and Why's of Guardianship

  • View Presentation Materials HERE.


October 26, 2021

  • Topic: Having your Person Centered Care Needs Met Through You Care Plan
  • View Presentation Materials HERE.


October 12, 2021

  • Topic: What is Person Centered Care?


September 28, 2021

  • Topic: IDPH Update:  It's Fall What should we be seeing? 
  • View Presentation Materials HERE.


September 14, 2021

  • Topic: Understanding Guardianship in IL
  • View Presentation Materials HERE.


August 31, 2021

  • Topic: Dementia Friendly Illinois
  • View Presentation Materials HERE.


August 17, 2021

  • Topic: Hospice and Palliative Care – What's the difference?


August 3, 2021

  • Topic: Understanding Dementia
  • View Presentation Materials HERE.


July 20, 2021

  • Topic: Care Plans – What are they and what do I need to know 
  • View Presentation Materials HERE.


June 22, 2021

  • Topic:  It's June… what should we be seeing
  • View Presentation Materials HERE.


June 8, 2021

  • Topic: Understanding Your Long-Term Care Discharge and Financial Rights
  • View Presentation Materials HERE.
  • Topic: Electronic Monitoring-Understanding Your Rights!   
  • View Presentation Materials HERE AND  HERE.
  • Topic: We Want to Hear from You! 
  • Topic: Advocating For Yourself! 
  • View Presentation Materials HERE
  • Topic: The Different Types of Long-Term Care Communities Where To Go To Advocate For Yourself or Those You Care About
  • View Presentation Materials HERE.
  • Topic: IDPH Revised Guidance for Nursing Homes; released on March 19, 2021.  
  • View Presentation Materials HERE
  • Topic: Family's and Resident's Concerns Regarding Visitation in Long-Term Care Facilities.  
  • View Presentations Materials HERE