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Resident and Family Support Council
The Resident and Family Support Council is a virtual forum to bring people together across the State. The goal of this Council is to educate and connect people about issues relating to residents and families in the long-term care system. These meetings will occur the 2nd and 4th Tuesday of each month at 3:00 with the topics determined through attendee input. There will be time for question and answer and resource sharing at each meeting. If you are interested in receiving invitations for future meetings, please email lee.moriarty@Illinois.gov and you will be added to our email group.
Meetings
July 23, 2024
Topic: Understanding Dementia Related Behaviors – moving from drugs to investigating the why
Description: People who have a dementia-related diagnosis often time have difficulty communicating their needs which may lead to what is referred to as “behavior”. But is what's being exhibited a reaction to what is going on around them or some unmet need? During this conversation, we will explore these questions and discuss some ideas on how to promote exploring what is prompting the adverse reaction in the individual. Please feel free to bring your own challenges to the meeting so that we can help problem solve.
July 9, 2024
Topic: Psychotropic Drugs: What You Need to Know About Standards of Care and Best Practices.
Description: Psychotropic Drug use including antipsychotics are overused in long-term care which has many adverse reactions for residents, particularly those who have a Dementia related Diagnosis. To make matters worse, Illinois ranks as the worst in the country for overprescribing these drugs. During this discussion, Richard Mallot from the Long-Term Care Community Coalition will provide background on the standards of care for nursing home residents and the problem of the widespread, inappropriate use of antipsychotics, particularly on residents with dementia. Discussion will focus on how this happens, why it is a problem, what appropriate dementia care looks like, and advocacy tips and tools.
Previous Meetings
June 25, 2024
- Topic: Illinois Legislative Update – Discussion of aging related bills that have passed during the 2024 Spring Session.
- View Presentation Materials: IDoA Legislative Update
June 11, 2024
- Topic: Illinois Department on Aging – a great resource for all Illinoisans!
- View Presentation Materials: IDoA 2024 Program Overview Presentation
May 28, 2024
- Topic: The Montessori Method in Dementia Care
View Presentation Materials: Montessori Presentation Handout
May 14, 2024
- Topic: Learning About the Different Types of Long-Term Care Communities in Illinois
- View Presentation Materials: Facility Types with Laws, Regulations & Advocacy Agency and Website Resources
April 23, 2024
- Topic: Moving Forward in Long-Term Care!
April 9, 2024
- Topic: Changing the Culture of your Long-Term Care Community – a tool to assist in this endeavor
- View Presentation Materials: Artifacts Training and Handouts.
March 26, 2024
- Topic: Understanding the Personal Needs Allowance for Medicaid Residents in Long-Term Care Communities
- View Presentation Materials: Personal Needs Allowance
March 12, 2024
- Topic: Who are the Ombudsman and How They Help Those Living in Care Communities
February 27, 2024
- Topic: Senior Scams- Protecting yourself and those you love
- View Presentation Materials: How to Protect Yourself, Technology-Assisted Frauds and Scams
January 9, 2024
- Topic: Everyone has the right to vote in our country and being in a long-term care community does not exclude you from that right.
- View Presentation Materials: 1, 2, 3
December 12, 2023
- Topic: Visiting with your loved one during the holidays - ideas of things to make all your visits more engaging.
November 28, 2023
- Topic: Let’s hear from you!
November 14, 2023
- Topic: Resident and Family Empowerment – a discussion regarding how to advocate for yourself.
October 24, 2023
- Topic: Staffing Needs to be addressed in LTC but are the new proposed federal regulations it?
- View Presentation Materials: PowerPoint 1, PowerPoint 2
October 10, 2023
- Topic: Your Way! Process for determining which Long/Short Term Home is right for You
- View Presentation Materials: Process for Achieving Your Way! Step-By-Step Process for Determining Which Home is Right for You
September 26, 2023
- Topic: The Point of View from the Long-Term Care Ombudsman Volunteers
September 12, 2023
- Topic: 25 Common Nursing Home Problems & How to Resolve Them
- View Presentation Materials: PowerPoint, Resource 1, and Resource 2.
August 22, 2023
- Topic: Understanding your Rights As a Resident In Long-Term Care - Continuing the conversation!
August 8, 2023
- Topic: Understanding Your Rights As a Resident In Long-Term Care
July 25, 2023
- Topic: The Fear of Retaliation is Real
July 11, 2023
- Topic: Making Life Easier Through Assisted Technology
June 27, 2023
- Topic: Good Reads & Good Listens—Recommended books and podcasts to help support your long-term care/aging journey.
- View Presentation Materials.
June 13, 2023
- Topic: Continuing Our Conversation About What Happens When I File a Complaint with the State About a Long-Term Care Facility?
May 23, 2023
- Topic: What Happens When I File a Complaint About Long-Term Care Facility with The State?
- Topic: Who’s Who in Long-Term Care
- View Presentation Materials
April 25, 2023
- Topic: Things I Wish I Knew When I Went Into a Long-Term Care Facility
- View Presentation Materials
April 11, 2023
- Topic: What Admission to a Long-Term Care Facility should look like: Contract Discussion?
March 28, 2023
- Topic: Using Federal “Care Compare” to Assess Nursing Home Ratings
March 14, 2023
- Topic: Did you know you can have a camera in your resident’s room?
- View Presentation Materials
February 28, 2023
- Topic: Person Centered/Directed End of life Care Presented by Nancy Flowers
- View Presentation Materials
February 14, 2023
- Topic: Advanced Directives - Uncomplicating Whats Seems Complicated!
- View Presentation Materials - POLST and Prairie State Legal Services
January 24, 2023
- Topic: Activities of Daily Living: What does this mean and what should it look like in long-term care?
January 10, 2023
- Topic: What is a Family Council, How do I Start One and what should it look like?
December 27, 2022
- Topic: The Gift of Resources to Empower II
- View Presentation Materials
December 13, 2022
- Topic: Staying Safe This Holiday Season
- View Presentation Materials - IDPH COVID-19 Update and LTC COVID Guidance
November 22, 2022
- Topic: Giving Thanks for Family Caregivers in Long-Term Care
November 8, 2022
- No meeting due to Election Day
October 25, 2022
- Topic: Meaningful Engagement During the Holidays
October 11, 2022
- Topic: Taking Your Loved One Out of The Facility: From a day outing to vacation, what do I need to know?
Sept 27, 2022
- Topic: Resident Rights Month – Celebrating an Empowered Life in Long-Term Care
- View Presentation Materials
September 13, 2022
- Topic: What Should Meaningful Engagement Look Like in Your Long-Term Care Facility?
August 23, 2022
- Topic: The Importance of Knowing Your Medications and What They Are For
August 9, 2022
- Topic: Being Self-empowered with your Dietary Choices
July 26, 2022
- Topic - Navigating Your Own Advocacy When You Live in A Long-Term Care Facility
- View Presentation Materials.
July 12, 2022
- Topic: Nursing Home Rate Reform in IL – paying our CNAs for years of service
- View Presentation Materials.
June 28, 2022
- Topic: You Can Be Treated for COVID – Understanding the various treatments and when/how these are administered
June 14, 2022
- Topic: Abuse, Neglect and Exploitation in Long-Term Care Facilities: Adult Protective Services Role and Ombudsman Role
May 10, 2022
- Topic: Resident & Family Support Council Year in Review- revisiting some of our most impactful conversations
April 26, 2022
- Topic: Sexual Expression in Long-Term Care Facilities
April 12, 2022
- Topic: Update on Legislation Pertaining to Long-Term Care
- View Presentation Materials HERE.
March 22, 2022
- Topic: Resident Rights – Your Rights as a citizen and a Facility Resident PART II
- View Presentation Materials HERE.
March 8, 2022
- Topic: Resident Rights - Your rights as a citizen and a facility resident PART I
- Topic: Resident Council Meeting - What are they for and what should they look like?
- View Presentation Materials HERE.
- Topic: Family Councils: A Way to Feel More Involved in Your Loved One's Facility
- View Presentation Materials HERE.
January 11, 2022
- Topic: Understanding Your Rights: The Right to Privacy and Confidentiality.
December 21, 2021
- Topic: The Gift of Resources to Empower
- View Presentation Materials HERE.
December 7, 2021
- Topic: We Want to Hear From You!
November 23, 2021
- Topic: Home For the Holidays- enjoying each other's company no matter where you live.
November 9, 2021
Topic: The How's and Why's of Guardianship
- View Presentation Materials HERE.
October 26, 2021
- Topic: Having your Person Centered Care Needs Met Through You Care Plan
- View Presentation Materials HERE.
October 12, 2021
- Topic: What is Person Centered Care?
September 28, 2021
- Topic: IDPH Update: It's Fall What should we be seeing?
- View Presentation Materials HERE.
September 14, 2021
- Topic: Understanding Guardianship in IL
- View Presentation Materials HERE.
August 31, 2021
- Topic: Dementia Friendly Illinois
- View Presentation Materials HERE.
August 17, 2021
- Topic: Hospice and Palliative Care – What's the difference?
August 3, 2021
- Topic: Understanding Dementia
- View Presentation Materials HERE.
July 20, 2021
- Topic: Care Plans – What are they and what do I need to know
- View Presentation Materials HERE.
June 22, 2021
- Topic: It's June… what should we be seeing
- View Presentation Materials HERE.
June 8, 2021
- Topic: Understanding Your Long-Term Care Discharge and Financial Rights
- View Presentation Materials HERE.
- Topic: Electronic Monitoring-Understanding Your Rights!
- Topic: We Want to Hear from You!
- Topic: Advocating For Yourself!
- View Presentation Materials HERE.
- Topic: The Different Types of Long-Term Care Communities Where To Go To Advocate For Yourself or Those You Care About
- View Presentation Materials HERE.
- Topic: IDPH Revised Guidance for Nursing Homes; released on March 19, 2021.
- View Presentation Materials HERE.
- Topic: Family's and Resident's Concerns Regarding Visitation in Long-Term Care Facilities.
- View Presentations Materials HERE.
