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Resident and Family Support Council

The Resident and Family Support Council is a virtual forum to bring people together across the State.  The goal of this Council is to educate and connect people about issues relating to residents and families in the long-term care system. These meetings will occur the 2nd and 4th Tuesday of each month at 3:00 with the topics determined through attendee input. There will be time for question and answer and resource sharing at each meeting. If you are interested in receiving invitations for future meetings, please email and you will be added to our email group.  


September 12, 2023

Topic: 25 Common Nursing Home Problems & How to Resolve Them

Description: Whether you are a nursing home resident, a family member, or a supportive friend, the information shared in this meeting will help give you the tools you need to identify and then resolve the problems that residents most frequently face. The information shared during this meeting will be based upon the updated work funded by the Commonwealth Fund. 

View Presentation Materials: PowerPoint, Resource 1, and Resource 2.

August 22, 2023

Topic: Understanding your Rights As a Resident In Long-Term Care—Continuing the conversation!

During our last meeting we started engaging in an extensive conversation about what Resident rights really look like. During this meeting we will continue this conversation and discuss how to make sure that you are listened to in regards to what you need, want and deserve. Remember, just because you move into a long-term care community, does not mean that you lose your rights to an empowered life.

August 8, 2023

Topic: Understanding your Rights As a Resident In Long-Term Care

Description: Just because you move into a long-term care community, does not mean that you lose your rights to an empowered life.  During this meeting we will be talking about Resident Rights exists and how to make sure that you are listened to in regards to what you need, want and deserve.    

Previous Meetings


July 25, 2023

  • Topic: The Fear of Retaliation is Real

July 11, 2023

  • Topic: Making Life Easier Through Assisted Technology

June 27, 2023

  • Topic: Good Reads & Good Listens—Recommended books and podcasts to help support your long-term care/aging journey.
  • View Presentation Materials.

June 13, 2023

  • Topic: Continuing Our Conversation About What Happens When I File a Complaint with the State About a Long-Term Care Facility?

May 23, 2023

  • Topic: What Happens When I File a Complaint About Long-Term Care Facility with The State?
May 9, 2023
  • Topic: Who’s Who in Long Term Care

April 25, 2023

April 11, 2023

  • Topic: What Admission to a Long-Term Care Facility should look like:  Contract Discussion?


March 28, 2023

  • Topic: Using Federal “Care Compare” to Assess Nursing Home Ratings

March 14, 2023

February 28, 2023

  • Topic: Person Centered/Directed End of life Care Presented by Nancy Flowers
  • View Presentation Materials  

February 14, 2023

January 24, 2023

  • Topic: Activities of Daily Living:  What does this mean and what should it look like in long-term care?

January 10, 2023

  • Topic: What is a Family Council, How do I Start One and what should it look like? 

December 27, 2022

December 13, 2022

November 22, 2022

  • Topic:  Giving Thanks for Family Caregivers in Long-Term Care

November 8, 2022

  • No meeting due to Election Day

October 25, 2022

  • Topic: Meaningful Engagement During the Holidays

October 11, 2022

  • Topic:  Taking Your Loved One Out of The Facility:  From a day outing to vacation, what do I need to know?

Sept 27, 2022

September 13, 2022

  • Topic: What Should Meaningful Engagement Look Like in Your Long-Term Care Facility?

August 23, 2022

  • Topic: The Importance of Knowing Your Medications and What They Are For 

August 9, 2022

  • Topic: Being Self-empowered with your Dietary Choices

July 26, 2022

July 12, 2022

June 28, 2022

  • Topic: You Can Be Treated for COVID – Understanding the various treatments and when/how these are administered 

June 14, 2022

  • Topic:  Abuse, Neglect and Exploitation in Long-Term Care Facilities: Adult Protective Services Role and Ombudsman Role
  • View Presentation Materials HERE AND HERE.

May 10, 2022

  • Topic: Resident & Family Support Council Year in Review- revisiting some of our most impactful conversations

April 26, 2022

  • Topic: Sexual Expression in Long-Term Care Facilities

April 12, 2022

  • Topic: Update on Legislation Pertaining to Long-Term Care
  • View Presentation Materials HERE.

March 22, 2022

  • Topic:  Resident Rights – Your Rights as a citizen and a Facility Resident PART II
  • View Presentation Materials HERE.

March 8, 2022

  • Topic: Resident Rights - Your rights as a citizen and a facility resident PART I
  • Topic: Resident Council Meeting - What are they for and what should they look like?
  • View Presentation Materials HERE.
  • Topic: Family Councils: A Way to Feel More Involved in Your Loved One's Facility
  • View Presentation Materials HERE.

January 11, 2022

  • Topic:  Understanding Your Rights:  The Right to Privacy and Confidentiality. 

December 21, 2021

  • Topic:  The Gift of Resources to Empower
  • View Presentation Materials HERE.

December 7, 2021

  • Topic: We Want to Hear From You!

November 23, 2021

  • Topic: Home For the Holidays- enjoying each other's company no matter where you live.

November 9, 2021

Topic: The How's and Why's of Guardianship

  • View Presentation Materials HERE.

October 26, 2021

  • Topic: Having your Person Centered Care Needs Met Through You Care Plan
  • View Presentation Materials HERE.

October 12, 2021

  • Topic: What is Person Centered Care?

September 28, 2021

  • Topic: IDPH Update:  It's Fall What should we be seeing? 
  • View Presentation Materials HERE.

September 14, 2021

  • Topic: Understanding Guardianship in IL
  • View Presentation Materials HERE.

August 31, 2021

  • Topic: Dementia Friendly Illinois
  • View Presentation Materials HERE.

August 17, 2021

  • Topic: Hospice and Palliative Care – What's the difference?

August 3, 2021

  • Topic: Understanding Dementia
  • View Presentation Materials HERE.

July 20, 2021

  • Topic: Care Plans – What are they and what do I need to know 
  • View Presentation Materials HERE.

June 22, 2021

  • Topic:  It's June… what should we be seeing
  • View Presentation Materials HERE.

June 8, 2021

  • Topic: Understanding Your Long-Term Care Discharge and Financial Rights
  • View Presentation Materials HERE.
  • Topic: Electronic Monitoring-Understanding Your Rights!   
  • View Presentation Materials HERE AND  HERE.
  • Topic: We Want to Hear from You! 
  • Topic: Advocating For Yourself! 
  • View Presentation Materials HERE
  • Topic: The Different Types of Long-Term Care Communities Where To Go To Advocate For Yourself or Those You Care About
  • View Presentation Materials HERE.
  • Topic: IDPH Revised Guidance for Nursing Homes; released on March 19, 2021.  
  • View Presentation Materials HERE
  • Topic: Family's and Resident's Concerns Regarding Visitation in Long-Term Care Facilities.  
  • View Presentations Materials HERE